I just recently started a Facebook page with the same title. I thought that it would be best to sort of get my feet wet so to speak in this whole realm of blogging. I looked at my first preview for this page and I realized something major. I have a lot of work to do. When I post to Facebook it seems like wading in the kiddie pool versus being able to be creative and put thoughts into words right here for all the world to see. I asked myself, "Self, Why did I wait?" It's a very valid question. The amount of technology I have to use to be able to express joy, pain, gratitude, and everything in between is a pure miracle. I am just starting out so please take it easy on me. Fighting Fibromyalgia Fabulously is the name of the page where I post in short blasts giving everyone updates on how I feel. Finally, from the bottom of the my heart, thank you for your support and please realize this blog is safe haven for anyone who wants to inquire. I have an open mind and heart with no judgements at all.
I was diagnosed with Fibromyalgia in 2009 amongst other things. I can guarantee this could have been done years prior. However, all the doctors I was seeing told me there was nothing wrong and its probably because I worked so much and I was depressed. This was the constant prognosis for years before I went to my current doctor in Clifton, NJ. Please understand that as I write these next few words I am not trying to be a Negative Nancy. I just need to paint the picture of my life and move forward. What a great coping mechanism writing is! I also recommend it to all of you who are experiencing the same kind of pain. I had lost about 80 pounds in 4 months in 2000. It was done in an unhealthy way completely. I worked out like a fiend four to six hours a day breaking it down to two times a day. I was on a steady diet of coffee and an amount of food smaller than a fist per day.
After a qualifying life event all that changed. I started mixing diet pills with coffee and booze. The food element disappeared. I thought I was a rockstar, however, I looked like the life was sucked out of me. You will never be on top of the world when you are six feet under. Eventually I got off that roller coaster to be welcomed with the tipping of scale. It went up and down for as long as I can remember. I was prescribed diet pills and things that I new were not good especially when the pill burnt as it hit the back of my throat. I took it any way. My friends I am here to tell you that when you are sick there is no magic bullet. The biggest step in getting better is finding a physician who will recommend a specialist.
My first real breakthrough was when my co-worker referred me to current doctor, Dr. Makar. He knew exactly what was going on with me and was able to tell me where my pain was. The minute I asked him how he knew he said, "Natalie, It's fibromyalgia." I simply said, "Fibro?" After a long talk about how this disease effects the nervous system and how the brain views pain I knew I was in for a long road. However, I felt such relief that I finally knew what was wrong. It's been a long journey for me and I am still experiencing symptoms. One of the biggest things is the flare ups. There are times when I get pain flare ups that are the absolute worst. It literally feels like someone is slicing into you with a tiny scalpel. The pain is what started the facebook page as well as the blog. Please know that I did recently go the doctor for my blood work and to tweak some of the medications I am on. I am still trying to work through the pain. The pain is surreal and I would not wish it upon anyone. If anything I would take it from them. I am so used to being in pain that when I am not in pain it feels abnormal. The other thing is that having fibro I will never be one hundred percent pain free. The pain can be managed with prescription medications such as Lyrica. Lyrica is what I am on now. These last few weeks have been an emotional roller coaster and dealing with the pain has been tremendous.
I am thankful that I have friends that keep in touch and make sure I am as comfortable as I can be. It is a wonderful thing to show that you care for someone. I think that is what should be the focus of the week. Please make sure that you let you all you loved ones know that you care for them. I am sorry but a facebook post does not count. Pick up the phone, send a package with something that will make them smile, send them an email if they are not available by phone, and do it now. I know that you will never regret sharing love which is truly the biggest gift of all.